Association Advocacy Forum in Washington, D.C., April 23-25. Greg and
Laura Mercer, Dr. Bryan Connell, Dr. Jon McKinsey, William Scurry and
Teresa Hoover along with other advocates from across North Carolina,
will join hundreds of people with the disease, caregivers and family
members from across the nation to engage in the democratic process and
directly appeal to their members of Congress about Alzheimer's disease.
The Advocacy Forum will include a keynote address from Health and
Human Services Secretary, Kathleen Sebelius, a candlelight tribute
rally, educational sessions and updates on research and legislative
efforts. The event culminates when the advocates descend on Capitol
Hill to meet directly with legislators.
Alzheimer's advocates were vital to the passage of the National
Alzheimer's Project Act (NAPA) and will now be asking members of
Congress to support an aggressive National Alzheimer's Plan that
accelerates and prioritizes government efforts on Alzheimer's
necessary to change the trajectory of the disease. Today an estimated
5.4 million Americans are living with Alzheimer's - a progressive and
fatal neurodegenerative disease that has no way to prevent, cure or
even slow its progression; and by mid-century as many as 16 million
people will have Alzheimer's.
In North Carolina alone, nearly 170,000 residents have Alzheimer's and
as many as 415,521 friends and family members manage the significant
emotional, physical and financial challenges of caregiving for their
loved ones.
Because Alzheimer's simply can't wait, it is crucial for lawmakers to
address the Alzheimer's crisis with the same commitment they
demonstrated in the legislation's historic passage. Greg and Laura
Mercer hope to represent all of the families that have been impacted
by Alzheimer's as Laura was diagnosed in 2008 at age 48 with young-
onset Alzheimer's.
"I'm one of millions of people in the United States affected by
Alzheimer's disease," said Laura Mercer. "This disease doesn't just
happen to individuals; its ripple effects are felt throughout entire
families and communities. I am going to Capitol Hill to tell lawmakers
the Alzheimer's epidemic must be meaningfully addressed by government
and a strong national strategy would signal their recognition of this
fact."
While the human toll is significant, the Alzheimer's Association 2012
Alzheimer's Disease Facts and Figures report also revealed the costs
to the nation to care for individuals with Alzheimer's or other
dementias are staggering as well. In the United States, care costs
will total an estimated $200 billion this year, including $140 billion
paid by Medicare and Medicaid and these costs are projected to soar to
$1.1 trillion in 2050.
For more information on how you can advocate visit www.alz.org/advocacy.
Alzheimer's Association
The Alzheimer's Association is the world's leading voluntary health
organization in Alzheimer's care, support and research. Our mission is
to eliminate Alzheimer's disease through the advancement of research;
to provide and enhance care and support for all affected; and to
reduce the risk of dementia through the promotion of brain health. Our
vision is a world without Alzheimer's. For more information, visit
alz.org or call our 24-Hour Helpline at 800-272-3900.
